Thursday, June 7, 2012

About a {boy} named Drew - June 2012

So here we are June, Drew is still dizzy, but we now have this awesome high back reclining wheelchair and he can get around the house. We are so blessed to have a house that he can get around in. 
As of now, he's been to a Cardiologist, and it's not his heart, a Neurologist, and it's not his brain, a Endocrinologist, and it's not his glands or hormones, an ENT and it's not his inner ears. 

So now we are on the waiting list for the Mayo Clinic in Minnesota waiting for Dr. Fischer, who is a pediatric specialist in Postural Orthostatic Tachycardia Syndrome.  {POTS} for short. While the Dr's and I aren't all that convinced that it's POTS it hasn't been ruled out, and since so many other things have been ruled out, it's a long shot, but it's a shot none the less. Drew's neurologist, is making a phone call to a local Mayo clinic that doesn't usually see children, to see if they can work with his case. We are also pursuing a Pediatric Rhumatologist to test him for Auto-immune disorders now.

On the bright side... 
you can see that he has such a wonderful sense of humor from the balloon picture. And with it being summer the pool is up and Drew wanted so bad to get in, so we put him in it.. and to our joyous surprise he loved it!! He can swim and not be dizzy in the water.. needless to say the kids spend pretty much everyday in the pool... which is a joyous sight!! 
 My other 3 kids have been so amazing through all of this, they have been more than helpful, and so compassionate. I
 don't know what I would do without them. 

That's all for now... 
thank you all for the continued thoughts and prayers.


Steph @ somewhatsimple said...

I hope you can get some answers soon! The inknown is very frustrating, but Drew's sense of humor is very encouraging!

April Williams said...

Becky I have been thinking of you and praying for you all. I hope answers come soon. There is nothing worse then a child in pain. I'm so glad to see he's still smiling.

Sara @ said...

Love that he still smiles and has a good attitude. The Lord is definitely with him on this journey, you guys are in our continued prayers.
Also, I couldn't think of better therapy during the Summer here ;)

Wendy said...

Will be praying for you. It is so hard when our children get sick. Hoping you have answers very soon.

Becky from PurdyThings said...

thank you guys so much for the prayers, and words of encouragement!
they mean more to Drew and our family then you will ever know!!